Simone Abrahamsohn, a resident of Toronto, shares her experience of becoming her big brother’s primary caregiver after her mother’s passing this summer. Navigating life as roommates with two middle-aged, neurodivergent siblings presents its challenges, despite the joy Stuart brings with his infectious giggle, love for pistachio milkshakes, and interest in violinist podcasts.
Stuart, who is autistic and a left-brain stem stroke survivor, requires assistance with daily tasks like feeding, transfers, grooming, and emotional support due to mood swings triggered by loud noises. Simone recalls the struggles they faced growing up, with Stuart’s introverted nature and stimming behaviors often leading to misunderstandings by others.
Despite their differences, Simone acknowledges her own struggles with ADHD and the effort it takes to manage her tendencies to avoid triggering Stuart’s sensitivities. Reflecting on past experiences of feeling embarrassed by her brother’s autism, she now strives to create a supportive environment for both of them, ensuring mutual respect and understanding.
While sacrificing her personal interests like acting classes to care for Stuart, Simone values their relationship above all else. With the help of caregivers and a positive outlook, she aims to establish a harmonious living situation for their unique needs as siblings. Embracing this second chance to be a better sibling, Simone is committed to fostering a loving and inclusive home environment for herself and Stuart.